Maternal Mental Health Awareness Week 2026 runs from 04 May- 10 May 2026, and this year’s theme is ‘A Decade of Voices’.

MHAWBanner .pngThroughout the week we’ll be sharing content from the Helix Expert by Experience Forum, including:

Born from Experience - Expert by Experience Jen

Helix thumbnails.pngOur first video features Helix Expert Jen, who openly shares her experience of #MaternalMentalHealth and the importance of support for new mums.

 

Sally's Experience 

Runningtraining_2020.jpgWritten by Helix Expert by Experience Sally, who reflects on her journey through postpartum psychosis and the long road back to family life. She now uses her experience to support others and improve perinatal mental health care.

Picture1.jpgWe sit together, laughing and combing the nits out of our daughter’s hair and remind ourselves how far we’ve come. The moments we now cherish—the seemingly “normal,” often chaotic moments of parenthood—are ones we never imagined we would feel deeply grateful for back in 2015.

At that time, our world was completely upended. Just days after giving birth, I was diagnosed with postpartum psychosis, a diagnosis that led me being separated from our newborn daughter and admitted to an acute adult psychiatric unit. The journey from there was nothing short of terrifying. We had no idea how—or if—I would recover. The experience was isolating, scary, and we were overwhelmed by questions of whether life would ever feel “normal” again.

Through this dark time, we encountered some incredible health professionals and individuals who helped us navigate a challenging, unfamiliar and often disconnected healthcare system. I did not have access to a mother and baby unit, or a specialist perinatal mental health team in North Wales at the time. I was fortunate to be in the position where my husband could advocate for me, and we came across a specialist psychiatry service through the UK charity Action on Postpartum Psychosis (APP).

NSPCC launch.JPGEventually, I accessed the treatment I needed, which was medication, psychological therapy, peer support and a supportive network of family and friends. With the right treatment, including electroconvulsive therapy (ECT), I began my long road to recovery. The support we received from Action in Postpartum Psychosis, in conjunction with clinical care, was invaluable and undoubtedly saved my life.

Today, we are lucky to be able to do the things we love as a family, but also share simple moments with our daughter, like laughing together about nits. That is something we will never take for granted.

I know how much the perinatal mental health landscape has evolved since we needed support but also recognise that there is still work to be done. Women are still dying from maternal mental illness and the trauma associated with perinatal mental illness can be devastating.

Runningtraining_2020.jpgWhich is why I continue to help raise awareness and advocate for families. I now work for APP, coordinating health professional training in postpartum psychosis. I am also part of the Helix Forum, where I work with a group of incredible individuals who are working towards improving care for those who will experience similar illnesses in the future.

Meet Kelly Berry, Clinical Commissioner/Case Manager, in the Helix Lead Provider Collaborative Commissioning Team

Written by Kelly Berry, Clinical Commissioner/Case Manager in the Helix Lead Provider Collaborative. Kelly outlines how she supports patient pathways, assures the quality of care within Mother and Baby Units, and works with Experts by Experience to inform future strategic planning in perinatal services.

Pathway Management

This part of my role involves management of pathways for patients through the Mother and Baby Unit and back out into the community. This means working with our Mother and Baby Units to   ensure the right people are in the right beds as close to home as possible. I have oversight of pathways through admission, treatment and discharge of individual patient journeys including any patients from Cheshire and Merseyside who are placed out of area.

Quality Assurance of Care and Treatment

My role also involves the quality assurance of the care and treatment of all patients from Cheshire and Merseyside that are placed within a Mother and Baby Unit. I undertake 6-8 weekly in person visits to the ward for individual review of care and treatment and this includes a review with all patients to obtain their views on their treatment, progress and overall admission. I am also a point of contact for patients and their families as well as clinicians and will support all involved to ensure care is appropriate, evidence based and collaborative.

I regularly liaise with regional and national forums to support shared learning and quality improvement which I can then share with our local Mother and Baby Unit to support patients as well as supporting strategic planning for future service commissioning improvements.

Strategic planning

As one of the strategic leads for Helix my role involves supporting the Lead Provider Collaborative in forward strategic planning of commissioning services. This involves working with our Helix Experts by Experience forum and the work completed this forum supports my role in strategic planning as the future plans for perinatal commissioning are heavily based on Expert by Experience views.

Born from Experience - Experts by Experience Jen and Becky

Helix thumbnails (1).pngThis piece brings together the voices of two Helix Experts by Experience, sharing candid reflections on becoming unwell after having a baby, the barriers to speaking up, and the impact on their families. Their experiences now help shape and strengthen perinatal mental health services.

 

Born from Experience - Expert by Experience Nia (Watch in English and Welsh)

Helix thumbnails (2).pngThis story is shared by a Nia, Helix Expert by Experience who describes her journey through postpartum psychosis, the challenges of being far from home without a local Mother and Baby Unit, and how her experience led to a successful campaign for specialist support in North Wales.

 

 

Born from Experience - Expert by Experience Sarah

Helix thumbnails (4).pngThis story is shared by Sarah, a Helix Expert by Experience, who reflects on becoming severely unwell, the rapid decline that followed at home, and the crisis point that led to her admission to a Mother and Baby Unit. She describes the long journey of recovery and how sharing her experience through the Helix Forum now helps others feel less alone.

 

Born from Experience - Expert by Experience Sally

Helix thumbnails (5).pngSally, a Helix Expert by Experience, describes her postpartum psychosis following a complicated birth, including confusion, hallucinations and a period of separation from her baby. She reflects on the long journey to diagnosis, the life‑saving treatment she eventually received, and how connecting with other women helped her recover. Her experience now informs training for health professionals and supports service design through the Helix Forum.

 

Born from Experience - Helix Expert by Experience Louise

Helix thumbnails (6).pngLouise, Helix Expert by Experience, reflects on becoming unwell after the birth of her second child, including overwhelming fatigue, a catatonic depressive episode and a period of separation from her family while receiving care in a Mother and Baby Unit. She describes how specialist support helped her rebuild confidence and bond with her son, and how sharing her experience through the Helix Forum now brings hope to her and others.

 

Born from Experience - Expert by Experience Jocelyn

Helix thumbnails (7).pngJocelyn, Helix Expert by Experience, reflects on developing postpartum psychosis after a traumatic birth while living abroad without access to UK perinatal services. She describes vivid hallucinations, the difficulty of seeking help, and the importance of partners and families being heard. Connecting with peer support transformed her recovery, and she now works in Mother and Baby Units, using her experience to support other mothers and strengthen specialist care.